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NiftyKeisha's avatar

Love this! I was just talking about hope recently how I can’t hope too much because I can’t handle it if things don’t go the way I want. The longer my illness wore on, the more I started to dislike the word hope. It’s like wishing for something that is unattainable. I don’t know what a good word replacement would be for me, but I’ve come to focus on the present and not even think about hope at all. I know deep down I still hope for things, but this is just easier for me mentally.

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Colleen Steckel: ME-ICC Info's avatar

I have thought a lot about hope after acquiring myalgic encephalomyelitis 35 years ago.

For me hope became dangerous when my hopes for returning to normal life were repeatedly dashed leaving me psychologically vulnerable.

I realized I was putting my hope in the wrong people. Knowledge about my disease renewed my hope.

I have seen too many suicides of people with ME because people who pushed "cures" onto ME patients didn't know what they were doing.

Because of the lack of education about this disease, there are a lot of snake oil salesman peddling hope.

I think the most resilient hope comes from knowledge.

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