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WilM's avatar

Thank you so much for this excellent, encouraging writing. It really touched me today, as I sit here having to surrender to my body during this flare, instead of all the things I WANT to do. I shared it with my wife, who is slowly building her gentleness, care, and trust of her own body as she claims her grief and anger about the constant, lifelong gaslighting by family and medical professionals. A horrendous pain in the ass and infuriating but at least she's no longer participating and reinforcing it. 😢

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Cw's avatar

I feel like there are also a lot of explicit and implicit messages from society to chronically ill people that further point 2: you’re not doing xyz (even things you can’t do or would be actively harmful for your particular condition) therefore it’s your fault, presenting chronic illness as a moral failing. For me, body mistrust shows up a lot when I’m about to do something out of my comfort zone or go to a place where I had a bad flare up before. Trying to be patient, listen to what my body says, but also know when I need a gentle push is a tough balance!

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