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I’m reminded that I’m sick multiple times per hour. There’s always something that needs my attention. Quick grab salt before you faint. Adjust your hyperextended joint. Take your meds. Debilitating nausea — eat a ginger chew. Even when I’m engaged in other tasks, like writing this very post, I have an almost constant awareness of my body. Perpetual body awareness is like elevator music—not loud enough to demand full attention, but just irritating enough to drain your energy.
i want to be more than sick, and i already am
Illness erodes your sense of self slowly over time by leaving you with just enough energy to survive and think about surviving (or so it wants you to think!). Illness is narcissistic — every time you try to put your other needs and interests first, to gain some distance, it claps back with an attention-grabber so dramatic that you have no choice but to pay incisive attention to it. Illness throws you into survival mode and then makes it excruciatingly difficult to crawl your way out.
Sometimes I’m so, so sick (did ya catch the pun?) of my life revolving around illness all day, every damn day. I’m at a point in my illness journey where I’m ready to make conscious space for myself to be a holistic human. To honor my own complexity. To purposely choose to champion other aspects of my identity and personality until they overpower the unrelenting reminders of my body’s needs.
This is a powerful practice that can benefit anyone. Maybe illness isn’t your constant. Maybe it’s work. Or kids. Or a partner. Do you give yourself time to be you?
we all love a list
To illustrate how I’m making room for the full version of me in a life dominated by chronic illness, here’s a list of some things I’m currently into:
philosophical models of God
experimenting with creative popsicle flavors using my cute, colorful molds
Molly Drake’s posthumously published album (Nick Drake’s mom - never a professional recording artist)
shea butter that leaves my skin even softer than it naturally is
that feeling when you look at a tree and just the get the sense that it lives a fulfilling life
Architectural Digest tours on YouTube
dates with peanut butter
learning to co-exist with the mice in my walls (ok I’m not that into this one, but allow me my delusion!)
vests layered over turtlenecks
face masks
Parker Posey’s accent on this season of The White Lotus
saying “I hear you” to loved ones
I kinda love myself, and that love feels louder when I allow myself room to pay attention to more than just my symptoms.
life is full of caveats
Giving any energy to these things is not possible when you’re fighting for your life. Earlier this month, multiple of my body systems started shutting down. I was scared, and my energy was finite. So if you’re in that stage, cut yourself some slack — opportunities to pursue joy do not disappear.
But if you’re struggling, yet stable, I invite you to consider small ways to inject your personality and interests back into your life. This isn’t meant to be yet another item on your to-do list. Rather, it’s an opportunity to find connection with your deeper, authentic self, and to show your nervous system that you are more than your diagnosis.
Sending lots of love for joy and healing always <3,
Dr. Talia
reflection for you: what are 3 small things you’re currently into? I’d love to know
Want to work with me 1-on-1?
I specialize in supporting you to live in harmony with your body, embrace your authentic self, access daily joy, and cultivate deep self-trust
send an email to chronicallythinkingphd@gmail.com
Want to find me other places?
buy me a tea; on instagram; talia’s lists of helpful things; meditate with me on aura health
Some previous posts you may enjoy:
where art thou, ambition? chronic illness will break your heart; the agony I was bearing by not speaking openly about chronic illness; on wishing for a different body
I love this post. So many of my hobbies and interests have had to change because I can't do certain things anymore (1.5 years into Long COVID so still new to chronic illness). It's been a struggle to figure out "who am I if I can't read for fun? Crochet? Got to musicals? Etc". I've done some values work (which haven't changed) but I love this list of "here's things I'm interested in". For me, it's cricket, world religions, world history, planners and other paper crafts, to name a few. Thank you again for continuing to share your life, illness and not.
Such a beautiful post! That popsicle looks so refreshing!